WE EXAMINE ETHICAL ISSUES THAT emerged during a community-based participatory research (CBPR) study in Toronto, Canada, exploring sexual health attitudes and practices among lesbian, gay, bisexual, trans, queer, and questioning (LGBTQ) young people (ages 17-26) labeled with intellectual disabilities. These ethical concerns included: (1) managing the risk of coercion, (2) consent to participate in the study, (3) issues of confidentiality and disclosure, (4) balancing beneficence with self-determination, and (5) role conflict for researcher-practitioners who participate in CBPR projects. Incorporating critical disability perspectives and a heightened awareness of professional role conflict into CBPR practices has the potential to foster development of more inclusive and accessible sexual health initiatives and research environments.

Additional Metadata
Keywords Accessible, Community-based participatory research, Inclusive research, Informed consent, Intellectual disabilities, LGBTQ, Research ethics, Vulnerable populations, Youth
Persistent URL dx.doi.org/10.1525/jer.2012.7.4.20
Journal Journal of Empirical Research on Human Research Ethics
Citation
Marshall, Z. (Zack), Nixon, S. (Stephanie), Nepveux, D. (Denise), Vo, T. (Tess), Wilson, C. (Ciann), Flicker, S. (Sarah), … Proudfoot, D. (Devon). (2012). Navigating risks and professional roles: Research with lesbian, gay, bisexual, trans, and queer young people with intellectual disabilities. Journal of Empirical Research on Human Research Ethics, 7(4), 20–33. doi:10.1525/jer.2012.7.4.20