Navigating risks and professional roles: Research with lesbian, gay, bisexual, trans, and queer young people with intellectual disabilities
WE EXAMINE ETHICAL ISSUES THAT emerged during a community-based participatory research (CBPR) study in Toronto, Canada, exploring sexual health attitudes and practices among lesbian, gay, bisexual, trans, queer, and questioning (LGBTQ) young people (ages 17-26) labeled with intellectual disabilities. These ethical concerns included: (1) managing the risk of coercion, (2) consent to participate in the study, (3) issues of confidentiality and disclosure, (4) balancing beneficence with self-determination, and (5) role conflict for researcher-practitioners who participate in CBPR projects. Incorporating critical disability perspectives and a heightened awareness of professional role conflict into CBPR practices has the potential to foster development of more inclusive and accessible sexual health initiatives and research environments.
|Keywords||Accessible, Community-based participatory research, Inclusive research, Informed consent, Intellectual disabilities, LGBTQ, Research ethics, Vulnerable populations, Youth|
|Journal||Journal of Empirical Research on Human Research Ethics|
Marshall, Z. (Zack), Nixon, S. (Stephanie), Nepveux, D. (Denise), Vo, T. (Tess), Wilson, C. (Ciann), Flicker, S. (Sarah), … Proudfoot, D. (Devon). (2012). Navigating risks and professional roles: Research with lesbian, gay, bisexual, trans, and queer young people with intellectual disabilities. Journal of Empirical Research on Human Research Ethics, 7(4), 20–33. doi:10.1525/jer.2012.7.4.20